For over nine years, I fought for my life, battling a genetic liver disease that left me in desperate need of a transplant. I endured four evaluations at some of the most respected medical institutions in the country—Oschner, Mayo Clinic, Tulane, and USC Keck. Every doctor I saw said the same thing: “Yes, you qualify for a liver transplant.” But at each turn, the board of directors said no.

 

The harsh reality I discovered through this process is that the transplant system, like so much of healthcare, is broken. Decisions that should be based on life and death are too often influenced by profits, statistics, and biases that have nothing to do with patient care. In my case, I felt the stigma attached to liver disease weighing heavily on the decision-makers. Most people assume that liver disease is the result of alcohol abuse or addiction. The shame of having a disease that others assume you brought upon yourself is palpable, and it adds another layer of struggle when you’re already fighting for your life.

 

A friend of mine saw the toll this was taking on me and stepped in to start a GoFundMe campaign. It was a lifeline, but it came with its own set of challenges. I’m an award-winning director, a woman who had a thriving career in film. But the moment you’re labeled as ‘sick,’ people stop hiring you. You become a risk—especially in the entertainment industry, where being unable to secure a completion bond can derail an entire project. My illness took away my ability to work, and at 60 years old, I felt the weight of age discrimination on top of everything else.

 

Michael Simonson, the Media Whisperer, helped me gain public attention during this time. It was a blessing, but the highs and lows of public visibility can be exhausting, especially when you’re fighting a terminal illness. Despite all of this, I refused to give up.

 

In 2019, I decided to take matters into my own hands. I began learning about biologics and regenerative medicine. At that point, I had nothing to lose. It’s 2024 now, and I’ve come a long way. I didn’t have a background in biology, but I became what some call a DIY biologist, or biohacker. This isn’t about taking supplements or experimenting with unproven methods—this is real molecular biology.

 

I started by purchasing kits from the Open Discovery Institute (the-odin.com), and that’s where my journey into biology truly began. It wasn’t easy, and the learning curve was steep, but I found it fascinating, challenging, and full of potential. Over the past few months, I’ve received three infusions of a proprietary biologic and exosomes, and I’ve seen real improvements in my health.

 

Now, with XzBio, I’m on a mission to help others who are in the same position I was in—people who have reached the end of the road in traditional healthcare. We’re starting clinics specifically for patients who qualify under the Right to Try Act, and we’ll eventually expand into offshore medical tourism clinics. Our goal is simple: to provide life-changing treatments to those who have been denied by a healthcare system that’s often more concerned with profits than people.

 

It’s not easy to have to learn all of this at such a late stage in life, but I’ve made it my mission to use what I’ve learned to help others. We plan to continue research that has the potential to improve quality of life for people with end-stage disease.

 

We strive to offer the highest level of care possible, with the determination to help as many people as we can. If you or someone you know could benefit from what we’re doing, please reach out. We’re here to offer hope when hope seems lost.

 

This is more than just my story—it’s the story of everyone who’s been let down by the healthcare system and told there are no more options. There is hope. There is another way. And we’re here to provide it.

 

 

Robyn Flanery

 

Our  goals